So we thought we were in the clear for her birthday when last week I woke Sarah in the morning for her feed and she was a little out of sorts, she had her feed and brightened up a little. I had an appt that day with her Cardiologist and he had one look at her and sent her around to emergency. I was standing at the Triage desk and she went all limp and floppy and the nurse grabbed her from me and said she is having a seizure. After being assessed they decided she would need to come in for some tests to see if it was seizure activity. She had a EEG done and was booked for an MRI. The EEG didnt show any activity and we ended up coming home the next day without the MRI as there was a 2 week wait on the inpatient list, so we are on the outpatients waiting list. Due to her coding after each surgery they are booking her a bed just in case as it will need to be done under a General.
So the 28th of November finally arrived and what a wonderful day it was. Sitting here now on Monday morning and I can reflect back on the last 12 months, it has certainly been the most challanging 12 months of mine and Michaels life, its been filled with so many different emotions and Ive learnt so much about myself and about the world and how cruel life can be, but Ive also had so many happy memories, Ive seen absolute miracles happen right before my eyes.
I was going to update on how Sarah is going but Ill leave you with a photo of Birth and yesterday and come back later with an update on Sarah herself.