The Diagnosis

Well where do I start.

Its been a very emotional day for all of us.

As you know this pregnancy and birth has been a rollercoaster ride and a half!

We spoke with her consultant in length today.

They have confirmed that Sarah has no pancreas and she also has Neonatal Diabetes.

There is only a handful of people that have this condition, Sarah is as far as they are aware the 9th person to be born, only 3 are still living.

The issue for Sarah lies in a few places the main one being with her liver. Of the existing Children know to have this condition the 6 children that had liver damage all passed away within the first few months and the neonatalogist has suggested this will be the likely outcome for Sarah and for us to prepare for that.

As you can imagine this is all still sinking in and we are yet to talk to the other children about it as we are just not sure how and when to discuss.

For the moment we are thankful for the almost 6 weeks we have had with Sarah and will treasure what time she has left however long that may be.

I have managed to contact one of the other living Children, a little boy that lives in New Zealand. Drs had the same concern for this little boy with his Liver, thankfully his liver turned out not to be damaged and he is now 9 months old and thriving.

As you can imagine its all still sinking in, I am meeting with the Endo Team today to discuss things in more detail.